I AM ALS In the News

Where Advocacy Becomes Headlines

I AM ALS is not just making noise—we’re making news.

As the largest patient-led ALS advocacy movement of the 21st century, we are changing laws, shifting narratives, and putting ALS on the national agenda. This page is a collection of the moments when the world took notice. The press coverage, the policy wins, the thought leadership—all driven by people living with and impacted by ALS.

Here, you’ll find stories that show what happens when the community leads—from legislative breakthroughs and research funding victories to cultural moments that amplify our cause. Whether it’s STAT News calling us “the most successful patient advocacy movement of the modern era” or a local paper spotlighting a community event, this is what power looks like. ALS is relentless. So are we. And the world is watching.