Welcome to the I AM ALS Blog

Fueling the Movement to End ALS

This is where hope, action, and progress come to life.

At I AM ALS, our superpower is our people—patients, caregivers, advocates, and revolutionaries who are rewriting what’s possible in ALS. This isn’t just a blog. It’s a megaphone for a movement. A home for the voices of those driven by urgency and grounded in community. A place to show that when the community leads, Congress listens.

Here, we’ll bring you stories of strength and survival, deep dives on policies we’re shaping, updates on the fight for access and equity, and everything in between. This is where we turn pain into purpose, where real people make real impact, and where we prove again and again: ALS is relentless. So are we. Together, we’re changing the future of ALS.