My wife and I, both journalists in our mid-30s, live in New York City. I originally hail from Massachusetts, including a 10-year stint in Boston before we moved here a few years ago. I was diagnosed with ALS in April 2023 after a several-month journey of slowly-evolving symptoms and a series of visits to doctors. Fortunately, my symptoms have continued to progress relatively slowly, and I currently receive amazing care at the Columbia ALS Clinic as well as via Synpaticure.

I got involved with I AM ALS this past spring, joining the Community Outreach and Clinical Trials teams — and the wonderful people I’ve met on each team inspire me beyond words. I’m honored to work alongside such selfless, passionate, caring, and dedicated warriors at I AM ALS and other advocacy organizations, including the ALS Association, and to be a lab rat for a host of incredible research organizations conducting important observational trials, including ALS TDI, EverythingALS, and the Muscular Dystrophy Association. I’m also excited to learn more about the research world as a Patient Fellow at the upcoming International Symposium on ALS/MND and as a Research Ambassador through NEALS’ Clinical Research Learning Institute.

My better half is not only an amazing partner and caretaker, but also has run multiple marathons to raise money for ALS causes; and she has plans for more. Here is a picture of us after a recent race in Chicago. Thank you to all of the staff and volunteers at I AM ALS for welcoming me into the fold!