Andrea Allen
Tianna passed away on April 5, 2015, at the age of 27. It was June 2014 when my daughter lost her voice. In March 2015 my daughter Tianna was diagnosed with a severe form of ALS caused FUS gene mutations. The doctor initially told us that she had 6 months to live....
Kimberly Bazia
To see such a strong independent man slowly lose his independence and quality of life, was beyond imaginable. Such a cruel disease. When my father received his ALS diagnosis, I honestly had no idea what that truly meant. I knew I had seen the Ice Bucket challenges all...
James Henderson
He was a builder, a technician, and a teacher. A loving husband and father. James was diagnosed with ALS just as the Covid pandemic began in 2020. We knew something was different two years prior but couldn’t get any answers. We chalked it up to getting older, working...