Judy Hunt

Aug 10, 2024

I am 64 years old and was diagnosed one year ago. I am 64 years old and was diagnosed one year ago. I am pretty much dependent on a caregiver to dress me, bathe me, help feed me, and help me in and out of bed. Really praying for a cure to this horrible...

Gina Sparrow

Aug 10, 2024

I truly live my life to the fullest every day. I’ve always been a baseball lover. I was told in December 2019 that I have ALS. The first words I said to my husband in front of the doctor was we are going to spring training 2020 … well before our nation...

Craig Dierksheide

Aug 10, 2024

I was given 6 months to live on November 5, 2019 … still here! I was diagnosed with ALS on September 11, 2018. I now am on a BiPAP full-time, 24/7. I was given 6 months to live on November 5, 2019 … still here! I turned 63 on March 19, 2021. I continue to...

Sandra Martoccia

Aug 10, 2024

I never wanted him to forget he wasn’t just a man with ALS. He was my man. My friend likes to tell this story and I always love to hear it. When my 48 year old former marathon running, surgeon husband was no longer able to move anything, but his neck, I moved him by...

Susan McDermott

Aug 10, 2024

My life will never be the same, but I’ll continue the fight to find a cure for ALS in my husband’s memory. My husband, Joe, was diagnosed with ALS one year after we retired to the Hilton Head, South Carolina, area. It took most of that year to get a diagnosis and that...