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Greg Heydet Sr

Greg Heydet Sr

Enough is enough, help us and allow us access to FDA treatments. I was diagnosed in October 2009, hanging on for treatments like NurOwn. I have heard and seen tens of thousands pALS that died. Enough is enough, help us and allow us access to FDA...

Gary Kurtis

It is such a cruel disease and since that time I dedicated my life to the care and cure for ALS. Sept. 11, 2002 the one year anniversary of the horrible events of 9/11, I went to work in DC knowing it would be far different than a year ago. Unfortunately that day I...

Helene Brooks

Still, each day, he still has the ability to make us laugh. ALS…three little letters…many do not know what it means. For us it means that the man that I have loved for 28 years has lost the use of his arms and hands, has trouble walking and communicating...

Gary Kurtis

He passed suddenly and it was such a shock and a huge void. Since that time I made a commitment to do all I can to ensure that others don’t have to experience a similar fate. My dad lost a relatively short battle with ALS Sept 11, 2002 the one year anniversary...
Penny Hicks

Penny Hicks

I lost my husband to this horrific disease on August 14, 2020. A mere 18 months after diagnosis. I lost my husband to this horrific disease on August 14, 2020. A mere 18 months after diagnosis. I witnessed a vibrant, warm, happy and charming man become a shell of what...