Kenneth Howard

Aug 10, 2024

ALS took away our hero, provider, daddy, and best friend. In the spring of 2018, my husband began to have issues with his right arm. He lost grip strength and had trouble using it. Ken went to our PCP, started physical therapy, and began the first of many tests. Blood...

Greg Heydet Sr

Aug 10, 2024

I continue to fight ALS both verbally and physically. At 51, I was diagnosed with ALS. I am now 64. I continue to fight ALS both verbally and physically. I’ve traveled to Washington DC a few times to represent all pALS for the need of access to treatments in the FDA....

Jeanne Hunter

Aug 10, 2024

My brother was diagnosed with ALS about 2 years ago. He will be 70 in January 2022. My brother was diagnosed with ALS about 2 years ago. He will be 70 in January 2022. He has a type of the disease called “Flail Arm Syndrome”. He has been going to the ALS clinic at the...

Ramon Lozano

Aug 10, 2024

I am an MD certified in medicine, Nephrology and Geriatrics. 75 years old doing Locum Tenens. But presently doing nothing because of ALS.

Layne Oliff

Aug 10, 2024

I may fall, but I get right back up! Plainfield, NJ and Lackawaxen, PA Diagnosed with PLS in 2017, changed to ALS in November 2020. Challenging perceptions every day to improve the management of people with ALS and assist in finding a cure for this awful disease. A...