Julie Ahlers Korte

Aug 10, 2024

At the age of 52, I was diagnosed with bulbar-onset ALS, a cruel joke since I’m a foodie and love to cook.  I AM ALS. In November of 2018, at the age of 52, I was diagnosed with bulbar-onset ALS, a cruel joke since I’m a foodie and love to cook. My kids — my...

Kristina Nelson

Aug 10, 2024

It’s important for the general population and the medical community to know who we are and what the faces of ALS look like. My fight began in 2015 with some simple balance issues and tripping over myself. I was sent to multiple doctors in multiple disciplines,...

Lisa Partin

Aug 10, 2024

I hate this disease more than anything for taking my daddy away. My dad was diagnosed with ALS and passed away in September 2016. It has been so devastating to my family. He was our rock and my best friend! I would give anything to have him back. I made a promise to...

Elizabeth Them

Aug 10, 2024

I fight and hold out hope that someday soon being diagnosed doesn’t mean you will eventually lose the things you love doing. I was always active. I played college basketball and enjoyed doing stuff, whether it be hiking, skiing, boating or walking my dogs. ALS steals...

Carrie Benton

Aug 10, 2024

We are ALS, and we will be loud. For my husband, his grandfather, our children, and countless friends affected … we continue to be the voice of those who cannot be a voice for themselves, as this disease robs them of that. In hopes that there will someday be available...