Deb Keeler

Aug 10, 2024

My family and I are still in shock. It’s all been very overwhelming, but my husband and I have a great support group. In July 2020 I started having issues with my speech and was constantly stuffy. I thought I had allergies or some sort of sinus issue. Spent time...

Angelina Fanous

Aug 10, 2024

ALS can strike anyone. Of any race or gender. At any time. My story begins like every other patient’s story: I was fairly healthy, in good shape, and completely content with the life I was leading as a journalist living in Brooklyn, NY. Before my 28th birthday,...

Lorri Carey

Aug 10, 2024

Out at the club in the 80’s, I saw a cute boy that my friends happened to know. Out at the club in the 80’s, I saw a cute boy that my friends happened to know. He was with another girl. I was assured they were just friends. So, I asked my friends to bring him to my...

Terri Weiler

Aug 10, 2024

My dad is my hero. I’ve always been a daddy’s girl. My name is Terri Weiler and my dad, an Air Force Veteran, was diagnosed with ALS at the beginning of Covid-19. The news was devastating and I did my best to pretend it wasn’t happening. My dad is my hero....

Rebecca Rottier

Aug 10, 2024

I AM ALS. … It means time is of the essence. It means I’m choosing to live with this, not give in. I AM ALS. What does that mean to me? Well, it means my life changed drastically, in just one second, after hearing those words. It means time is of the essence. It...