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Melody Ward

Melody Ward

Though everything in my life is changing, I have begun the process of living and leaning into this new slightly ‘funky’ story. A year ago February 2022, my leg begin shaking when I was in a performance. As a retired professional dancer, I was collaborating on a...
Roseann Hickman

Roseann Hickman

I have a very strong family and support system in place and we are hitting the pavement running. I am 59 years old and was diagnosed with ALS in December of 2022. I am married with four children and eight grandchildren. I am very active in my community with several...
Jillian Whitten

Jillian Whitten

How can a semi-truck come to assail my child and I can’t move to save her? A story I don’t want to write. A life I don’t want to live. A diagnosis I don’t want to be true. A child I beg not to die. Tick tock. Tick tock. Your daughter, a...
Karen Stewart

Karen Stewart

No one should have to feel this way that there is not hope. Visited my son last evening. He’s two years from diagnosis of ALS. He is totally wheelchair bound. Last night he said even if NurOwn was given to him last night, he didn’t think it would change...

Matthew Goodman

Passed August 2003 age 65 Lois Lynn Garson Passed August 2003 age 65