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Debra Hallisey

Debra Hallisey

I am an advocate for family caregivers of all ages. I am an advocate for family caregivers of all ages. I first began to understand the challenges this disease presents to everyone in the family when I learned of and began supporting, Hope Loves Company. It is the...

Carol Mongiello

At 48 my son was diagnosed with rapid progression ALS. 5 years and 5 months he still fights for his life. At 48 my son was diagnosed with rapid progression ALS. 5 years and 5 months he still fights for his life. Unable to move a single muscle now. Feeding tube, Trach,...
Michele Stellato

Michele Stellato

I had just turned 32, bought a house with my husband and was ready to start a family when I learned I had ALS after experiencing stiffness and weakness in my right hand and muscle twitching. I had just turned 32, bought a house with my husband and was ready to start a...
Dara Corless

Dara Corless

In memory of the love of my life Robert Corless xoxo In memory of the love of my life Robert Corless xoxo 8604
Irene Shapiro

Irene Shapiro

My father was diagnosed with ALS in October 2020. I joined the I AM ALS Legislative Affairs Team as a volunteer advocate because I owe every opportunity and success to his selfless sacrifices and dedication. My father was diagnosed with ALS in October 2020. I joined...