Lindsay Abromaitis-Smith

Aug 10, 2024

I have so much joy and love and goodness and gratitude every day. I grieve every day for my old body and the independence I once had. This is a heavy path to be on. But I have so much joy and love and goodness and gratitude every day too. The balance sways on this...

Kaitlin Swanson, Psy.D

Aug 10, 2024

The day after my 29th birthday, a month before my wedding, I was diagnosed with Amyotrophic Lateral Sclerosis (ALS), and everything changed. “When you’ve done everything you can do, that’s when God will step in and do what you can’t do.” 2 Corinthians 12:10 The year I...

Melinda Boye

Aug 10, 2024

Future generations will beat this. I am a 59 year old Mom who is a home-based Medicine physician. I carry the SOD1 ALS gene. My hands and arms have become weak. My dad passed at 68 and my brother passed at 51 due to ALS. Future generations will beat this. I am glad to...

Debra Hallisey

Aug 10, 2024

I am an advocate for family caregivers of all ages. I am an advocate for family caregivers of all ages. I first began to understand the challenges this disease presents to everyone in the family when I learned of and began supporting, Hope Loves Company. It is the...

Jonathan Selikoff

Aug 10, 2024

Jon was a wonderful son, loving husband and an engaged father Jon was a wonderful son, loving husband and an engaged father. He was a musician photographer and graphic designer. He loved sharing his joy of letter press printing and frequently invited his son’s...