Rioey Solomon

Aug 10, 2024

I watched her persevere through the hardest of challenges all while being an incredible mom, an amazing teacher, and a truly life changing mentor to my pre-teen self. I’m not sure if it’s my place to share this story but I want to raise awareness. My 6th grade teacher...

Mary Tiknis

Aug 10, 2024

I have been the caretaker of my children, grandchildren and husband–now I need them to take care of me. I have been a nurse for 48 years. I have been the caretaker of my children, grandchildren and husband–now I need them to take care of me. I was...

Bruce Davis

Aug 10, 2024

My brother faced this disease with courage and humility. It is a devastating disease, for the person, and family/caregivers. In 2004, my late brother, Bill Davis, lost his battle with ALS. He was 64 years old. In 2000, he retired after 36 years in law enforcement. He...

Loretta Jamar

Aug 10, 2024

It’s not a disease that affects only old men; it targets men and women of every color, and every age.  I am Loretta Jamar. I live in New Jersey. I was diagnosed August 2019 with bulbar onset. Usually people with bulbar onset progress rapidly. They did an EMG and...

Dana Fichera

Aug 10, 2024

It is a horrible horrible disease to watch someone go through. ALS is a horrible and debilitating disease. I lost my grandmother to it. To watch someone that has their brain 100% intact and everything else just go it’s so sad. It is a horrible horrible disease to...