Anita, my mom was a valiant fighter even before ALS came on our radar. Anita, my mom, was a valiant fighter even before ALS came on our radar. She fought for what she wanted it life. She was fiercely loving and that didn’t stop even as her abilities waned. We...
ALS is relentless and the most cruel disease that I have ever witnessed. My wife Lorraine was a beautiful woman. She was fun and smart. She loved our dogs, Wynonna, our home and life. She was a medical biller for a hospital in Delaware. She loved Christmas and the...
I lost my mother to ALS in 1997 and my brother to ALS in 2021. I lost my mother to ALS in 1997 and my brother to ALS in 2021. In that time span, while a lot has been done to keep PALS comfortable and they now have equipment (Tobii, personalized motor chair, etc.) to...