Kathy Lamarre

Aug 10, 2024

Sheryl Zemaitis Pastore, I love you and I miss you so much. ❤️ ALS affected our family when my sister Sheryl told us that she had this horrible disease. Sheryl was my oldest sister who was always there for me, kind of like my protector. There was nothing worse than...

Karen Page

Aug 10, 2024

He always said he was the luckiest man alive, I think I was the lucky one to have the love of my life and to be able to care for him at home. My husband Bob fought Stage 4 metastatic melanoma for 4 years only to be diagnosed with Bulbar onset ALS shortly after he...

Michael Bullen

Aug 10, 2024

The MDA invited us to attend the ALS game at Fenway. The rest is history! Thank you MDA! After Lisa was dx’d 6/1/18, we were completely clueless about ALS. The MDA invited us to attend the ALS game at Fenway. The rest is history! I met some amazing families and people...

Kimberly Stack

Aug 10, 2024

There is no ALS in the family but Alzheimer’s. Because of that, he had genetic testing and was found to have the C9 mutation. My husband was diagnosed with ALS in April of 2019, after an increasingly problematic foot drop. He is a childhood cancer survivor and a...

Sandra Wong

Aug 10, 2024

I lost my husband to ALS in seven short months. He was 46 — a loving father of three girls and a devoted husband. I lost my husband to ALS in seven short months. He was 46 — a loving father of three girls and a devoted husband. We miss him every day and do...