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Robin R Leaper

Aug 10, 2024

I had a hard time thinking or talking about my diagnosis for several months without crying. I’m 52 years old. I have three children. My symptoms began in October 2022. I began to occasionally choke on foods I ate or liquids I drank. I attributed the choking to a...

Tonya Schmidt

Aug 10, 2024

My family and I want others impacted by ALS to know they are not alone and we continue to push for a cure. My courageous mom Susan Fish passed away in 1993 at the age of 41 after a 5 year battle with ALS. My dad, a wonderful caregiver, passed away in 2022. My family...
Mira Klingenberg

Mira Klingenberg

Aug 10, 2024

His goal is to stay alive until his little girl is old enough to remember him. My son Matt, 37 years old, married to Kelly, with 3 little kids, has ALS. He was diagnosed in March 2018. He was in the NurOwn phase 3 trial, also in EAP 1 & EAP 2. He knows it helps...

Paula

Aug 10, 2024

During her illness, she kept her positive attitude and had a kind and gentle spirit. She was thoughtful, compassionate, uplifting and gracious with integrity and dignity throughout her life. In the spring of 2018, my sister Paula was diagnosed with ALS. During her...