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Paula Freund

Paula Freund

I fight every day to keep living. And every day, I can feel my body getting a little weaker. I was diagnosed with ALS in October 2018. I am 54 years old. I have a son and two beautiful grandchildren. I need to live to see them grow up. I fight every day to keep...
Matt Creen

Matt Creen

I was diagnosed with ALS in 2013. I told my family, friends and colleagues I’ve never given up in my life and I wasn’t going to start now. I was diagnosed with ALS in 2013. I told my family, friends and colleagues I’ve never given up in my life and I wasn’t going to...
Michael Robinson

Michael Robinson

I was formally diagnosed on December 17th, 2015 — and I am still here and thriving. I am 49 years old and married almost 25 years to my amazing wife and now caregiver, Tina. We have two kids ages 22 and 20. I am a psychosomatic medicine physician and did...
Sabrina Johnson

Sabrina Johnson

ALS, for being only three letters, changes everyone’s lives forever. While people who are diagnosed know they have a terminal disease, the people they love are diagnosed with a heartache for a lifetime. Growing up, my dad was my best friend. He was the world’s...
Lori Andre

Lori Andre

In one word I would say that I AM ALS means hope. In one word I would say that I AM ALS means hope. Patients, caregivers and advocates are part of this community that is moving the ball forward. They are bringing awareness to ALS that will eventually lead to cures....