Emily Cerbone

Aug 10, 2024

The diagnosis devastated all of us. “When people describe my dad, I always hear him described as quiet and kind. True. My dad also always thought first of others and had trouble saying, “No.” As an adult, I constantly reminded him that it was ok to sometimes say...

Kristin Rankin

Aug 10, 2024

While I can no longer play my favorite sport, every year I cheer on the Divas at a charity tournament for breast cancer. Before ALS permanently put me on the DL, I spent most summer Sundays for nearly two decades playing 16 inch softball (a uniquely Chicago sport)...

Elizabeth Kennedy

Aug 10, 2024

When she told me she had ALS, I was relieved to hear that she did not have a brain tumor. I did not know what ALS was… My mom’s journey with ALS started with the loss of the use of her right thumb. She went to Mayo Clinic to find and answer and receive a...

Jennifer Lewis

Aug 10, 2024

This week is my first week of Relyvrio. I hope it makes some difference in my life. We shall see. As the Pandemic crashed into our lives in 2020 my family was impacted, like many people. My daughter became a travel nurse, & my son was attacked in the riots of...

Carolyn Mahnke

Aug 10, 2024

She was a model of grace and courage. My mother was diagnosed with ALS at age 61. She never, ever complained. She felt blessed by family, the medical community, church members, social workers, friends and everyone who was horrified at this disease and did all we could...