Jennifer Barrett Fajardo
But despite the fact that my husband still works full-time (and is a rock star at his job), ALS continues to steal away his physical mobility–and with it, his ability to do simple things we take for granted throughout the day. It feels uncomfortable to describe...
Jose Fajardo
Jose passed away on December 19, 2024. Below is his story in his own words. At 55, I was in the best shape of my life in early 2019, working out 4 days a week, running mountain trails in Hawaii, and loving every day of my life. I played soccer till I was 52, biked on...
Eric Chun
ALS is like drowning on land, like being buried alive. And until now, 100% fatal. I’m in the fight to change all that. I am a 49-year-old husband and father who is living with ALS. I grew up under the shadow of ALS. My family has the genetic SOD1 mutation. My...