
Fred Drinkwater
As a child of ALS, I learned a whole new definition of love. As a child, I had a picture in my mind of what true love should look like. Inspired by the many fairytales I would read over and over, I thought love was easy and that finding your true love would be like...
Mandi Bailey
My stepdad, Fred, was our person. He was my babies’ hero, my protector and confidant, and the love of my mom’s life. We even had a saying in our family, “We don’t need anything, we have a Fred!” My stepdad, Fred, was our person. He was my babies’ hero, my...
Susan Hoerber
I AM ALS and I want to make a difference in fighting the beast called ALS. I AM ALS … I was diagnosed with ALS in January 2018, but it took three years from the onset of symptoms to be diagnosed. It started with weakness in my arms in 2015 and funny twitches with my...