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Rachel Williams

She continues to exemplify leadership, kindness, humility and humor through this terrible disease. My best friend and mentor Sandy Morris has ALS. She is the bravest human I know. She continues to exemplify leadership, kindness, humility and humor through this...

Jennifer Bullard

All the doctors in the compartmentalized system kept clearing me and dismissing me because I was anatomically normal. I was just diagnosed with bulbar ALS. All the doctors in the compartmentalized system kept clearing me and dismissing me because I was anatomically...

Dale Miller

I am a 67 year old woman diagnosed with ALS 2 years ago. I am a 67 year old woman diagnosed with ALS 2 years ago. My legs have been getting progressively slower and less responsive. I live by myself and all my family has passed away. I do not know how I will manage...

Lisa Jensen

We joined walks to raise money and awareness and donated money in the hopes of a cure. My Dad died from ALS in 1994. His diagnosis opened a can of worms. We started hearing from aunts, uncles and cousins on his side, misdiagnosed and lost to us through lack of...
Lisa Cross

Lisa Cross

My progression is slow, and I rejoice! I love life and will fight this disease with everything that I am.  It’s a Family Affair. So far, four of eight children have tested positive for C9orf72. Two have manifested ALS; one of those two has passed. I am the other. I...