Every day became difficult, because he never knew what he would lose that day. My father was diagnosed with ALS and sadly has since passed from the disease. Before ALS, my dad was a strong, motorcycle riding, golf loving, independent and funny man. He was 21 years...
An estimated ten members of my family have been diagnosed with ALS including my younger brother, father, grandmother, aunt and uncle. My name is Alexis and I carry the SOD1 ALS gene. An estimated ten members of my family have been diagnosed with ALS including my...
I AM ALS has served as a reminder that hope lives on, that obstacles will be overcome, and that faith will be rewarded, and the future is not to be feared. I am a retired USMC Officer married to my lovely brilliant wife Jessica Swann, and father to a great son Jack. I...
Ed was a huge inspiration to me from the day I first met him in 1997. My friend, Edward McNeill, lived 41 years after being diagnosed with the bulbar type, starting in his speech. He was born in 1936 and died in 2021 in hospice. Here’s a quote from Ed:...
However, she never lost the spark in her eyes that reminded us of her strength as her body withered or her wit and sense of humor as she lost her ability to speak. My mother died of ALS on July 3, 1996 after suffering a slow but steady decline for 18 months. At that...
