Lauren Arce
It changed our lives in a big way. My mom was diagnosed with ALS in May 2017. It changed our lives in a big way. My dad had to stop working, my work took a backseat, and I had to move in with my parents to care for my mom. But most importantly, we continue to hold...
Gwen Petersen
Nothing in ALS is a straight line, but the intent behind these tools is to make the journey a little less treacherous. I AM ALS patient advocates don’t talk about change — we make change. An example of this is PaCTD Rating Criteria, part of the very first...
Autumn Podzunas
My mom passed away in September 2002 from ALS, and her brother passed away from it. I was diagnosed on August 23rd, 2019, with familial ALS.