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Maurine Tombrello

Maurine Tombrello

I lost one of my best friends to ALS in 2015. … It was debilitating and not a day goes by that I don’t think about her. I lost one of my best friends to ALS in 2015, 14 months after she was diagnosed. It was debilitating and not a day goes by that I don’t think about...
Phil Green

Phil Green

I get up each day motivated to make a difference … I get up each day motivated to make a difference in the fight for access to treatments, the search for biomarkers and the creation of legislation that helps people impacted by this disease. I bring the urgency...
Sandy Ritchey

Sandy Ritchey

I AM ALS because I watched my mother die of this heartbreaking disease that no one wanted to talk about. My mother died of ALS. Please find a cure. Horrible way to die. I AM ALS because I watched my mother die of this heartbreaking disease that no one wanted to talk...
Jonathan Pickens

Jonathan Pickens

I AM ALS is not a phrase I’m proud of, but I can be proud of the work I do to help cross out those last three letters of that phrase. I am an asymptomatic SOD1 carrier. I’m 34 years old and involved in a pre-symptomatic biomarker study being done in Miami. I’m a...
Laura Parker

Laura Parker

I AM ALS is a movement that has brought new hope and new energy to finding a cure and I want to be involved. My mother, Colleen Clary, passed away from ALS in 2004 at age 59. My dad took care of her for five years. I know first-hand how the disease affects families. I...