Shaun Kalpakoff

Aug 10, 2024

I have learned to live well with ALS, and I am here to help everyone live their lives to the fullest! At the age of 36 in 2017 I was diagnosed with ALS. I have a wonderful 12 year old son, and I enjoy watching him grow up. I have learned to live well with ALS, and I...

Mindy

Aug 10, 2024

It’s important for me to make memories with Nanee. There’s so little time left. This feels so familiar. I take my mother’s hands in mine, try to uncurl them under the faucet. Her left hand is clawed, now permanently stuck, rigored. I don’t exactly know how to wash an...

Renee Rizzo

Aug 10, 2024

I’m really happy I AM ALS is supporting me and doing what they can. I’m really happy I AM ALS is supporting me and doing what they can. My name is Renee Rizzo and I was diagnosed with ALS on August 13th, 2019.

Sandy Morris

Aug 10, 2024

**Sandy passed away on August 28, 2022. Below is her story in her own words.** I feel incredibly blessed for the life I have been allowed to live. My husband and I have been together for almost thirty years. I enjoyed my own career while raising three beautiful humans...

Trevor Stoffer

Aug 10, 2024

I have hope and determination, and I always enjoy a good fight. This is undoubtedly the biggest fight of my life, but I am in it to win! At 44, with three children ages 4, 8 and 11, my beautiful wife and I heard those words we feared most, “You have ALS.”...