Panagiota Karahalios

Aug 10, 2024

We wanted to enjoy our kids and grandkids and enjoy each other while he was working to be retired. My husband is waiting for a cure!! He does not have enough time to wait for 5 years. Not for a death sentence! He was working as a carpenter for 40 years. He worked very...

Eric Maman

Aug 10, 2024

I connected with each of my boys in a special way through baseball, because in those moments on the field, we were kids together. One of the greatest joys of fatherhood has been coaching my three sons in little league baseball. Baseball is a unique sport. Through...

Gwen Petersen

Aug 10, 2024

I was listening to my body, but no one was listening to me. You know you are getting old when… You age out of a <35 group. And a group that so many others simply don’t know exists: that is, people under 35 living with ALS. How many of you have heard, “But...

Osiel Mendoza

Aug 10, 2024

I’m not searching for pity by explaining this. I don’t think anyone in the ALS community is searching for that. We just want to be heard. And want to create a future without ALS. My name is Osiel Mendoza. I was diagnosed with ALS On October 25th, 2016 at...

Shaun Kalpakoff

Aug 10, 2024

We all still have a lot to live for. Lou inspires me to never give up, for my son Ashton. Lou Gehrig was the first patient advocate for ALS. He showed positivity, determination and gratitude to the world. He famously said “I may have gotten a bad break, but I...