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Shaun Kalpakoff

Shaun Kalpakoff

I have learned to live well with ALS, and I am here to help everyone live their lives to the fullest! At the age of 36 in 2017 I was diagnosed with ALS. I have a wonderful 12 year old son, and I enjoy watching him grow up. I have learned to live well with ALS, and I...
Jerry Manning

Jerry Manning

It can be very emotionally draining to keep a positive outlook, but I will continue to fight the good fight until the good Lord feels I’ve filled my purpose here on Earth. **We lost Jerry to ALS on October 23, 2021. Read his obituary here. His story, in his own...
Christine Ravely

Christine Ravely

ALS isn’t going to keep me from traveling! To begin with, the first sign I had that ended up being caused by ALS was in May of 2019, when we were in Southern California for my nephew’s wedding. I wore a pair of dressy pumps – but the left one kept falling off, my foot...
Roger Brannon

Roger Brannon

Twenty five percent of the National ALS registry represents Veterans. I want people to know that—I want that number to be in the spotlight. It has been just over four years since I was diagnosed with Amyotrophic Lateral Sclerosis (ALS). I still have a hard time...
Teri Dillion

Teri Dillion

Yet even though I haven’t found a miraculous physical recovery, this illness–along with the support of my husband, family, and community–has taught me how to be strong and persevere, and challenged me to cultivate gratitude in simple joys I once took for...