Nicole McCabe

Aug 10, 2024

We must take a stand together and fix the broken system. Until then, I will fight with all my might until ALS takes my last breath. Just a couple of weeks after my 32nd birthday I heard those haunting words ALS. How could this be? I was running half marathons and...

Leah Stavenhagen

Aug 10, 2024

I have had to learn how to ask for help and how to accept it. How to live in the now and concentrate on those I’m with. How to rethink my definition of success and what I want from life. During the spring of 2018, I began waking up in the middle of the night...

Bruce Daman

Aug 10, 2024

Through the summer, as my physical abilities continued to deteriorate, a friend with ALS said it’s as if a thief comes every night and steals a little more of you. Living Your Best Life: 2020 – ALS, Covid and The Yellow Parakeet In May of 2019 a neurologist...

Autumn Podzunas

Aug 10, 2024

Since I was dx. My legs are weak. My thumbs are useless. My voice is hard to hear sometimes. I was diagnosed with familial ALS on 8/23/19. I have the C9 gene. Since I was dx. My legs are weak. My thumbs are useless. My voice is hard to hear sometimes. I have a...

Michael Pauldine

Aug 10, 2024

One of the first signs of ALS came as I was playing baseball. I hit a weak grounder to third and as I was trying to dig it out and run to first as hard as I could, I tripped and fell. It was the first sign of foot drop caused by ALS. Some parents get to brag to the...