Peter Smit

Aug 10, 2024

Rather I focus on what I can do at this very moment and not on what was lost or what the future holds. In the spring of 2019, I was working as a freelance spokesperson for the local government in the town Sliedrecht in the Netherlands. I noticed I had some difficulty...

Osiel Mendoza

Aug 10, 2024

I’m not searching for pity by explaining this. I don’t think anyone in the ALS community is searching for that. We just want to be heard. And want to create a future without ALS. My name is Osiel Mendoza. I was diagnosed with ALS On October 25th, 2016 at...

Craig Colby

Aug 10, 2024

My symptoms started in July 2007 and was finally diagnosed in October 2008. I spend a lot of time advocating for all patients! My symptoms started in July 2007 and was finally diagnosed in October 2008. I spend a lot of time advocating for all patients! My wife and I...

Nicole McCabe

Aug 10, 2024

We must take a stand together and fix the broken system. Until then, I will fight with all my might until ALS takes my last breath. Just a couple of weeks after my 32nd birthday I heard those haunting words ALS. How could this be? I was running half marathons and...

Shaun Kalpakoff

Aug 10, 2024

We all still have a lot to live for. Lou inspires me to never give up, for my son Ashton. Lou Gehrig was the first patient advocate for ALS. He showed positivity, determination and gratitude to the world. He famously said “I may have gotten a bad break, but I...