


Craig Dierksheide
I was given 6 months to live on November 5, 2019 … still here! I was diagnosed with ALS on September 11, 2018. I now am on a BiPAP full-time, 24/7. I was given 6 months to live on November 5, 2019 … still here! I turned 63 on March 19, 2021. I continue to...
Shaun Kalpakoff
We all still have a lot to live for. Lou inspires me to never give up, for my son Ashton. Lou Gehrig was the first patient advocate for ALS. He showed positivity, determination and gratitude to the world. He famously said “I may have gotten a bad break, but I...
David Doane
I work relentlessly promoting ALS legislation with New England and Maine legislators and developing a team of people with ALS to support these efforts. In the Spring of 2017, my wife Michelle and I retired from our healthcare jobs in Dallas Texas and relocated along...