Morgan Geniviva

Aug 10, 2024

I hate that I didn’t get more time with my dad but I am thankful for the memories I have with him and the person I am because of him. I was always a daddy’s girl growing up. I wanted to do whatever my dad was doing even if that meant waking up at the crack of dawn to...

Craig Dierksheide

Aug 10, 2024

I was given 6 months to live on November 5, 2019 … still here! I was diagnosed with ALS on September 11, 2018. I now am on a BiPAP full-time, 24/7. I was given 6 months to live on November 5, 2019 … still here! I turned 63 on March 19, 2021. I continue to...

Shaun Kalpakoff

Aug 10, 2024

We all still have a lot to live for. Lou inspires me to never give up, for my son Ashton. Lou Gehrig was the first patient advocate for ALS. He showed positivity, determination and gratitude to the world. He famously said “I may have gotten a bad break, but I...

David Doane

Aug 10, 2024

I work relentlessly promoting ALS legislation with New England and Maine legislators and developing a team of people with ALS to support these efforts. In the Spring of 2017, my wife Michelle and I retired from our healthcare jobs in Dallas Texas and relocated along...

Sunny Brous

Aug 10, 2024

My advice to anyone regardless of disease affiliation or tenure is to lean into this community. Hey y’all I’m Sunny.  I was diagnosed in January 2015 at 27, and just celebrated 6 years and my 34th birthday. I’m a dog and cat mom that lives in Hico, TX. I’ve...