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Jenny Smolinski

Jenny Smolinski

Parenting young kids with ALS adds another layer to an already difficult path of living with ALS, but every day I pray a treatment is discovered so no families have to go through this. I am currently 43 but was diagnosed at age 35 in 2013 when my daughters were 1 and...
Melinda Boye

Melinda Boye

Future generations will beat this. I am a 59 year old Mom who is a home-based Medicine physician. I carry the SOD1 ALS gene. My hands and arms have become weak. My dad passed at 68 and my brother passed at 51 due to ALS. Future generations will beat this. I am glad to...
Debra Hallisey

Debra Hallisey

I am an advocate for family caregivers of all ages. I am an advocate for family caregivers of all ages. I first began to understand the challenges this disease presents to everyone in the family when I learned of and began supporting, Hope Loves Company. It is the...

Eleta Donaldson

I am so lucky to have met my husband through kitten ball/baseball. He is my support and caregiver as I try to live with this terrible disease. To the owners, player and managers of Major League Baseball, I am living with ALS. In one of the newsletters from I AM ALS...
Brian Larson

Brian Larson

We took several great trips in the first couple of years, but he eventually became wheelchair-bound and his world shrank to what he could access through his eye gaze computer. At 28 years old, my son Ryan was thriving in his career, owned a house, and had a great...