Lindsay Abromaitis-Smith

Aug 10, 2024

I have so much joy and love and goodness and gratitude every day. I grieve every day for my old body and the independence I once had. This is a heavy path to be on. But I have so much joy and love and goodness and gratitude every day too. The balance sways on this...

Melissa Thompson

Aug 10, 2024

He went downhill so fast. It was his breathing capacity that failed. My husband was diagnosed on May 18, 2020 and this awful disease took him January 3, 2021. He went downhill so fast. It was his breathing capacity that failed. I did everything possible for him. He...

Judy Hunt

Aug 10, 2024

I am 64 years old and was diagnosed one year ago. I am 64 years old and was diagnosed one year ago. I am pretty much dependent on a caregiver to dress me, bathe me, help feed me, and help me in and out of bed. Really praying for a cure to this horrible...

Mia Wellons-Carlisle

Aug 10, 2024

Frustrated at times but we made the most of a happy day knowing it could be her last. My grandmother, Christine Goodman Baker, died September 24, 1994. I saw a thriving dance teacher lose her ability to talk. Then write, then type and finally had to use an alphabet...

Jennifer Pickard

Aug 10, 2024

He has always been like Superman! It is an awful journey to see what’s happening to him rapidly. To the ALS community, My dad was diagnosed a year ago. It is happening so quickly. We are desperate to get him some drug that will stop it. We are desperate to find it. He...