Ben Reynolds

Aug 10, 2024

I’ve been diagnosed with sporadic ALS for almost two years. I’m a 39 year old father of 3 daughters. Married to my best friend. I’ve been diagnosed with sporadic ALS for almost two years. I’m no longer working and enjoy traveling and showing my kids as much of the US...

John Barlow

Aug 10, 2024

I know my attitude is a choice I make every day, even when there are setbacks. Diagnosed in 2022, my decline has been pronounced but gradual. I’ve tried to stay positive and engaged with people and activities. I know my attitude is a choice I make every day,...

Bill Olivier

Aug 10, 2024

I gathered both sons and all four grandchildren at a major league baseball game. I was diagnosed with ALS in October 2020. The ALS local chapter asked me to join them at Lou Gehrig day on June 2 2021. I read Lou Gehrig’s farewell speech and was projected up onto...

Spero Koulouras

Aug 10, 2024

As a coach, my throws started losing their zip. Fly balls hit in practice weren’t traveling as far. My name is Spero Koulouras and I was diagnosed with ALS in the fall of 2019. What led up to the diagnosis? I blame it on softball. As a coach, my throws started losing...

Robin R Leaper

Aug 10, 2024

I had a hard time thinking or talking about my diagnosis for several months without crying. I’m 52 years old. I have three children. My symptoms began in October 2022. I began to occasionally choke on foods I ate or liquids I drank. I attributed the choking to a...