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Juan Reyes

Juan Reyes

So should I wallow in self pity? Heck no! I’m a Dad, I’m Pops, until I take my last breath. “Let me walk you through it.” This phrase has taken on a new meaning for me as a father. You see, I can no longer walk due to ALS. As the father of 4, I would say...

Linda White

I have lost 4 immediate family members to ALS: Mother, Uncle, Cousin and Grandfather. I have lost 4 immediate family members to ALS: Mother, Uncle, Cousin and Grandfather. Our family suffers from the rare familial disease that afflicts speech first and moves very...

Ashley Chernikovich

It started in 2018 when I was 23, affecting my right dominant hand. It started in 2018 when I was 23, affecting my right dominant hand. I was a college graduate at the time seeking employment for a year. My legs were affected with cramps and minor twitching which gave...
Natalie Davis

Natalie Davis

This all has been a learning experience for us all. We have 4 children and 1 grandson. My husband was diagnosed last year with MND & ALS. This all has been a learning experience for us all. We have 4 children and 1 grandson. We want answers and we want a cure. How...
Kate Nycz

Kate Nycz

As I started to research and reach out for resources, I found it was not a rare disease affecting old white guys anymore, but there were a lot of strong young women like myself being taken out by this menace. On the day Stephen Hawking died from ALS I began my journey...