Don Bloom

Aug 10, 2024

The Lou Gehrig monument was my introduction to his story and he became a childhood hero of mine. … Little did I know that 61 years later I would be diagnosed with ALS. In 1956, a few months before my eighth birthday, my dad took me to Yankee Stadium for the...

Kate Frost Fink

Aug 10, 2024

I have seen ALS take members of my family away from C9orf72 related ALS/FTD. I refuse to let the disease take who I am away. I was diagnosed with ALS in Oct. 2019 and am living with it. I’m in my late 40’s blessed with a husband, two daughters, a son in law and...

Juan Reyes

Aug 10, 2024

So should I wallow in self pity? Heck no! I’m a Dad, I’m Pops, until I take my last breath. “Let me walk you through it.” This phrase has taken on a new meaning for me as a father. You see, I can no longer walk due to ALS. As the father of 4, I would say...

Loretta Jamar

Aug 10, 2024

It’s not a disease that affects only old men; it targets men and women of every color, and every age.  I am Loretta Jamar. I live in New Jersey. I was diagnosed August 2019 with bulbar onset. Usually people with bulbar onset progress rapidly. They did an EMG and...

Jim Thomson

Aug 10, 2024

My ALS journey started in February of 2020 with slurring speech. After 3 months of misdiagnoses I was diagnosed with ALS. I’m a 72 year old husband, father, grandfather and in 1 month I will be a great grandfather!! My life is full, I’ve been married for 37 years to...