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Ron  Raymond

Ron Raymond

I’ve been living with ALS since 2000. I’ve been living with ALS since 2000. I’m 67 years old and live with my wife in upstate NY. ALS is a horrible disease and it’s only because I have a loving wife and very good people who help us daily that...
Robert Demanett

Robert Demanett

I feel I have been chosen to fight for this cause with whatever I can do for as long as I can, whether that be to educate as many people as I can or to raise as much money as I can for research. My name is Robert Demanett. I was diagnosed with ALS November of 2020. I...
Dora Sementilli

Dora Sementilli

9/24/20 my life changed forever. Hi my name is Dora and I am ALS. 9/24/20 my life changed forever. After one year of probing with what was wrong with me I was diagnosed with an inhumane disease that breaks down your nerve cells. It reduces functionality in your...
David LaForest

David LaForest

Around November of last year, I started to notice that my head was dropping and about half way through my day I could not hold it up at all. By the time I would get home from work I was exhausted from spending so much energy just trying to hold my head up. My name is...

Katherine Brooks

My family was complete and we were building a beautiful future when on October 27, 2020 our world turned upside down — I was diagnosed with ALS. I am 52 years old, a working wife, mother and Christian. In 2005 I adopted a beautiful baby girl from China, my only...