James Henderson

Aug 10, 2024

I have always been very active but now am in my wheelchair and dependent for everything. That doesn’t stop me from teaching my grandchildren to fish. I was diagnosed a year and a half ago, although I know my symptoms started three years ago. I have always been very...

Justin Upchurch

Aug 10, 2024

While ALS may determine how or why I die, I will not allow it to determine how I live my life. My name is Justin Upchurch. I’ve been married to my amazingly talented and beautiful wife for 20 years and we have three wonderful children. I’ve always been a fairly...

Jose Fajardo

Aug 10, 2024

Jose passed away on December 19, 2024. Below is his story in his own words. At 55, I was in the best shape of my life in early 2019, working out 4 days a week, running mountain trails in Hawaii, and loving every day of my life. I played soccer till I was 52, biked on...

Stacie Votaw

Aug 10, 2024

**Stacie passed away in March of 2024. Below is her story in her own words.** Up until my diagnosis in April 2021, I described myself as a lover of arts, a techie of sorts, a problem solver, and a fierce advocate. But thanks to ALS, I no longer fit that description....

Lisa Cross

Aug 10, 2024

My progression is slow, and I rejoice! I love life and will fight this disease with everything that I am.  It’s a Family Affair. So far, four of eight children have tested positive for C9orf72. Two have manifested ALS; one of those two has passed. I am the other. I...