Keegan Hale

Aug 10, 2024

Since ALS, we have been traveling/making memories together via photography for our daughter to look back on someday. A week before my 30th birthday, I was diagnosed with ALS and we found out that my wife was pregnant with our first child. I spent most of my life very...

Stephen Weber

Aug 10, 2024

I do not feel sorry for myself, nor would I want anyone else to. I was diagnosed with ALS on October 8, 2021 at the age of 79. I have already lived a full and productive life. I do not feel sorry for myself, nor would I want anyone else to. However, I do want us to...

Greg Heydet Sr

Aug 10, 2024

I continue to fight ALS both verbally and physically. At 51, I was diagnosed with ALS. I am now 64. I continue to fight ALS both verbally and physically. I’ve traveled to Washington DC a few times to represent all pALS for the need of access to treatments in the FDA....

Donald Gage

Aug 10, 2024

I spent my whole life achieving my dream. I spent my whole life achieving my dream. A wife, 2 children, and a fun job. I was a long road getting to this point. 40 years and I finally made it. Then it was taken away from me and them because of an ALS...

Jennifer Bullard

Aug 10, 2024

All the doctors in the compartmentalized system kept clearing me and dismissing me because I was anatomically normal. I was just diagnosed with bulbar ALS. All the doctors in the compartmentalized system kept clearing me and dismissing me because I was anatomically...