Jennifer Lewis

Aug 10, 2024

This week is my first week of Relyvrio. I hope it makes some difference in my life. We shall see. As the Pandemic crashed into our lives in 2020 my family was impacted, like many people. My daughter became a travel nurse, & my son was attacked in the riots of...

Jack Payne

Aug 10, 2024

I was diagnosed with ALS in 2020. I am Junior Jack Payne. I was diagnosed with ALS in 2020. In the outset, I experienced symptoms such as trembling hands and a weak right knee. Eventually, the right foot dropped. In 2021, a specialist inserted a stent in my leg as a...

Robert Machado

Aug 10, 2024

I struggle every day with fatigue and weakness. My wife, Judy, does most things for me. I am 77 years old and diagnosed with ALS in September 2022. It took me 1 1/2 years to get this diagnosis. My wife and I had to ask for tests and procedures all based on my many...

Perry Lucas

Aug 10, 2024

So here’s hoping I can do my part to help find a cause and cure for this disease. April, 2022, I am writing to let you all know that a little more than a week ago I was diagnosed with ALS. While it was not the news we hoped for, it is something that our family...

Christine Chromiak

Aug 10, 2024

It’s crazy to have a terminal illness, and then to be let go- given nothing to do about it. It made me feel lost. No pills. No treatment. Nothing I could do to make it better. Just try to live with this incredible weight on my shoulders. Update: Christine passed away...