My husband, Chuck, is our pALS. He is 47. He was diagnosed in April 2018. We have four children, two daughters that are 24 & 22 and two sons that are 17 & 16. My husband, Chuck, is our pALS. He is 47. He was diagnosed in April 2018. We have four children,...
There is no ALS in the family but Alzheimer’s. Because of that, he had genetic testing and was found to have the C9 mutation. My husband was diagnosed with ALS in April of 2019, after an increasingly problematic foot drop. He is a childhood cancer survivor and a...
I was always told no one could love me unless I loved myself first. Well Brad made me feel loved and I loved him. My husband and I met in 2002. Neither myself or Brad had never been married before. We married late. I was 49 and he was 41. I married a younger man. I...
I never wanted him to forget he wasn’t just a man with ALS. He was my man. My friend likes to tell this story and I always love to hear it. When my 48 year old former marathon running, surgeon husband was no longer able to move anything, but his neck, I moved him by...
Still, each day, he still has the ability to make us laugh. ALS…three little letters…many do not know what it means. For us it means that the man that I have loved for 28 years has lost the use of his arms and hands, has trouble walking and communicating...
