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Mary Kusior

Mary Kusior

Son Marcus Noble diagnosed with ALS, followed at Mass General. Son Marcus Noble diagnosed with ALS, followed at Mass General.
Jennifer Barrett Fajardo

Jennifer Barrett Fajardo

But despite the fact that my husband still works full-time (and is a rock star at his job), ALS continues to steal away his physical mobility–and with it, his ability to do simple things we take for granted throughout the day. It feels uncomfortable to describe...

Nancy DiLeo

My husband Andrew is a retired carpenter and was diagnosed with ALS Jan. 7, 2021. My husband Andrew is a retired carpenter and was diagnosed with ALS Jan. 7, 2021. We are fighting for the ACT for ALS to be passed!!! He is fighting so hard and we love him very...
Alexandra Coultas

Alexandra Coultas

I will advocate for the rest of my life to help fight for a cure and make noise for people that no longer can. My husband Eric was diagnosed with ALS 3 weeks before turning 34. We went from planning our future, looking to buy a larger home and expand our family, to...
Len Harris

Len Harris

Life is still fun but that’s only because we choose to make it that way. I met the love of my life in 2015. I finally asked her to marry me in 2018. We were married on my late mother’s birthday in October of 2019. Life was great with the exception of some unexplained...