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Karen Page

Karen Page

Aug 10, 2024

He always said he was the luckiest man alive, I think I was the lucky one to have the love of my life and to be able to care for him at home. My husband Bob fought Stage 4 metastatic melanoma for 4 years only to be diagnosed with Bulbar onset ALS shortly after he...

Erica Norton

Aug 10, 2024

My grandmother truly led the way for me. When I was just 5 I learned the ASL phrase for “I love you.” It was taught to me by my grandmother in the hospital where she spent time before passing away from ALS. Years down the road, I became a massage therapist...
Michael Pulley MD PhD

Michael Pulley MD PhD

Aug 10, 2024

It is a difficult task delivering the diagnosis, but it needs to be done by someone who has the expertise — and more importantly, the compassion. I’ve cared for ALS patients for more than 20 years and became director of our ALS center more than 10 years ago....