Autumn Podzunas
Since I was dx. My legs are weak. My thumbs are useless. My voice is hard to hear sometimes. I was diagnosed with familial ALS on 8/23/19. I have the C9 gene. Since I was dx. My legs are weak. My thumbs are useless. My voice is hard to hear sometimes. I have a...
Jean Swidler
I hope that in organizing with other familial ALS family members and participating in research we can increase the standard of care for familial ALS patients, but also hopefully prevent and better treat this terrible disease. My first encounter with ALS was witnessing...Mindy
It’s important for me to make memories with Nanee. There’s so little time left. This feels so familiar. I take my mother’s hands in mine, try to uncurl them under the faucet. Her left hand is clawed, now permanently stuck, rigored. I don’t exactly know how to wash an...