Lisa Cross

Aug 10, 2024

My progression is slow, and I rejoice! I love life and will fight this disease with everything that I am.  It’s a Family Affair. So far, four of eight children have tested positive for C9orf72. Two have manifested ALS; one of those two has passed. I am the other. I...

Sarah Beers

Aug 10, 2024

My name is Sarah Beers, I have been very impacted by ALS, not only watching and caring for my family members going through it, but the potential of me and my three older brothers getting it when we are older. My beautiful mom passed away from ALS in October after...

Eric Chun

Aug 10, 2024

ALS is like drowning on land, like being buried alive. And until now, 100% fatal. I’m in the fight to change all that. I am a 49-year-old husband and father who is living with ALS. I grew up under the shadow of ALS. My family has the genetic SOD1 mutation. My...

DeVona Hickerson

Aug 10, 2024

This disease is a beast, and I will be a voice for critical therapies and a cure until I can be heard no more. My name is DeVona Hickerson. I was diagnosed with ALS on March 5, 2021. I was a very active person. In fact, in the fall of 2020, I was riding a bike on...

Brian Larson

Aug 10, 2024

We took several great trips in the first couple of years, but he eventually became wheelchair-bound and his world shrank to what he could access through his eye gaze computer. At 28 years old, my son Ryan was thriving in his career, owned a house, and had a great...