Mindy Uhrlaub – How I Talked to My Teens About My Genetic Status
It was hard not to tell my perceptive sons, now seventeen and fourteen, who were part of my support network. But I didn’t want to worry them and I didn’t want them to fear that they would develop ALS – especially since they couldn’t even be tested yet. How I Talked...
Jean Swidler – My Research Experience
My mom was a civically-minded person and was always involved in many altruistic endeavors – I wanted to do some small part for ALS research in her memory. My Research Experience By Jean Swidler As I coped with my mother’s battle with ALS, I heard from her and...
Kimberly Wilkins
There are a total of 10 children among my siblings and me who may also be gene carriers. My grandfather (whom I never met), my father, and my brother have passed from ALS. I am an ALS gene carrier. There are a total of 10 children among my siblings and me who may also...