Michael Cosgray

Aug 10, 2024

At 17, I drove her to a MLB game, bought her an ice cold Coke, and we enjoyed every pitch together. ALS can’t steal THAT. Little did I know a pair of tickets my father handed me to sit in green seats at Riverfront Stadium would be the last baseball game I would...

Paula Trefiak

Aug 10, 2024

It gives me hope that we will find effective treatments and potentially a cure within my children’s lifetime. Baseball is inspiring people to come together for a cause that devastated one of their legends and continues to devastate approximation 3,000 great Canadians...

Mindy Uhrlaub

Aug 10, 2024

For several years, I kept my genetic results as a C9orf72 gene carrier a secret. The only people other than my doctor who knew were my husband, my brother, and my parents. I asked all of them to keep my news quiet until I told my kids three years later, when they were...

Daughter, Familial ALS Family Member, C9 Gene Carrier

Aug 10, 2024

I took the test because I knew it would be positive. I thought: “I take after my dad in so many things, why would this be any different?” ALS does not discriminate against race or gender – We are Latinos. I lost my dad to ALS. He was kind, genuine, generous, ate...

Laura Hanson

Aug 10, 2024

On my way home from his memorial I started to notice foot drop. In June 2019 my dad died from ALS. He told us, his children, that it was not genetic and we don’t need to worry. On my way home from his memorial I started to notice foot drop. Two and a half years...