Scotty Easter

Aug 10, 2024

I was terrified to talk about due to the amount of people in my family it has affected. Since being diagnosed I come to realize that’s there is a need to bring awareness and to help researchers to raise money to help find a cure. Hello, My name is Scotty Easter, I...

Melissa L Armstrong

Aug 10, 2024

We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We had no idea the C9orf72 familial gene was even in our family until my older sister got drop foot then a nerve conduction test. We...

Victoria Purdum

Aug 10, 2024

5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation. My name is Victoria Purdum and I live in Maine. 5/2/22 I was diagnosed with ALS via a genetic test that showed a C9ORF72 mutation. My wife, Trudi Chase, is my caregiver. I have limb...

Robert Bradford

Aug 10, 2024

I won’t live to see the benefits that will come about from this research, but others will. Others like my children and grandchildren. My name is Robert P. Bradford. I am 68 years old. I served in the Navy during the Vietnam Era on the USS Worden as a hull...

Dean Roberson

Aug 10, 2024

As of 7 Nov 2022, I am still walking, not very fast nor very far. But I am walking. My Name is Dean Roberson and I am: Diagnosed with Familial ALS, a Father of 8 Children, Married to the Love of My Life, #5 member of my family to have ALS, Retired Veteran, Business...