Darlene LaMountain

Aug 10, 2024

We asked WHY? He was a great person, son and new dad. His daughter was 3 months old when God took him from all of us. I want to share my story of my son’s best friend who at the age of 29 lost his battle with ALS. He was a 3 star athlete and high school football...

Bonnie Sue Stephan

Aug 10, 2024

I am now 67 and have lost 2 friends to this terrible illness. Leonard Parker was my Dad. He was 50ish when diagnosed and I was 20ish. I am now 67 and have lost 2 friends to this terrible illness. One, Vaughn, 2 weeks ago, the other, Rocco, 2-3 years ago. Vaughn in...

Amanda Hunt

Aug 10, 2024

Now I am a single mom of 3 crazy fatherless boys all because ALS took the person I loved most in this world. I am a 33-year-old widow of ALS with 3 boys, 6, 4 and 2. My husband died of ALS last May. He was diagnosed on Oct. 15  and died on May 1st. The day his...

Eric Chun

Aug 10, 2024

ALS is like drowning on land, like being buried alive. And until now, 100% fatal. I’m in the fight to change all that. I am a 49-year-old husband and father who is living with ALS. I grew up under the shadow of ALS. My family has the genetic SOD1 mutation. My...

Peggy Osterman

Aug 10, 2024

Like Lou Gehrig, my dad faced his greatest fear with strength and grace. Growing up on Chicago’s South Side, my dad took us to many games at the old Comiskey Park. I can remember driving in with my dad, buying peanuts outside of the park, and, especially,...