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Norma Jean Womack

Ed was a huge inspiration to me from the day I first met him in 1997. My friend, Edward McNeill, lived 41 years after being diagnosed with the bulbar type, starting in his speech. He was born in 1936 and died in 2021 in hospice. Here’s a quote from Ed:...

Katherine Samiljan

Ron was a fun, kind, caring, funny, adventurous person and it was all taken away from him, leaving his wife, 3 sons, and grandchildren. This isn’t my story. This is the story of Ron Weiland. Ron was my dad’s best friend since we moved to Florida. He was a...

Christina Jackson

Veterans need justice. Anyone who has ALS needs justice. My father died from ALS and dementia. He was a veteran. He died at age 69. I took care of him. Veterans deserve justice. For he would still be alive if he didn’t fight for our country. I wouldn’t...
Mark Purvis

Mark Purvis

David had just gone through a tough divorce and I had been laid off from work so I became his chauffeur, his errand boy and his advocate. I introduced myself to his pulmonologist as “Dave’s hetero life mate.” I didn’t even know what ALS was...
Debbie Lower

Debbie Lower

Mom lived with ALS with tremendous courage and grace. She was and still is an inspiration to me. Happy Heavenly Mother’s Day to my Mom and best friend, Karen! This is a photo of her at her first ALS Walk in 2007. We lost her 2 years later at the age of 65. She...