Part of moving forward with my life is honoring Mary Ann’s memory. Inspired by a dear friend who lost her husband to ALS, I am staying in the fight as an ALS Advocate, so I can do my small part to increase awareness about ALS and help those affected by this terrible...
More research is needed to determine CAUSE, DIAGNOSIS and a CURE! It’s too late for my husband but it’s not too late for those living with this disease. My husband David was a healthy 62 year old when out of nowhere started having weakness and shortness of breath. He...
It confirmed what we all knew, ALS had taken away everything but she was still the same person. My Mother, Virginia Loncar, died of ALS over 25 years ago. She was such a strong presence in our family. She is still remembered and talked about daily. Her battle with ALS...
It is such a cruel disease and since that time I dedicated my life to the care and cure for ALS. Sept. 11, 2002 the one year anniversary of the horrible events of 9/11, I went to work in DC knowing it would be far different than a year ago. Unfortunately that day I...